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Psoriatic Disease UK
Privacy Notice

This privacy notice tells you what to expect us to do with your personal information.

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  • Contact details

  • What information we collect, use, and why

  • Lawful bases and data protection rights

  • Where we get personal information from

  • How long we keep information

  • How to complain

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Contact details

Email

info@psor.org

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What information we collect, use, and why

We collect or use the following information to provide services and goods, including delivery and third-party referrals:

  • Names and contact details

  • Gender

  • Pronoun preferences

  • Addresses

  • Date of birth

  • Health information (including medical conditions and medical history)

  • Payment details (including card or bank information for transfers and direct debits)

  • Website user information (including user journeys and cookie tracking)

We also collect or use the following information to provide services and goods, including delivery and third-party referrals:

  • Health information

We collect or use the following information to receive donations or funding and organise fundraising activities:

  • Names and contact details

  • Addresses

  • Payment or banking details

  • Donation history

  • Tax payer information (for Gift Aid purposes)

We collect or use the following personal information for service updates or marketing purposes:

  • Names and contact details

  • Addresses

  • Marketing preferences

  • Website and app user journey information

We also collect or use the following information for service updates or marketing purposes:

  • Health information
     

Lawful bases and data protection rights

Under UK data protection law, we must have a “lawful basis” for collecting and using your personal information. There is a list of possible lawful bases in the UK GDPR. You can find out more about lawful bases on the ICO’s website.

Which lawful basis we rely on may affect your data protection rights which are in brief set out below. You can find out more about your data protection rights and the exemptions which may apply on the ICO’s website:

If you make a request, we must respond to you without undue delay and in any event within one month.

To make a data protection rights request, please contact us using the contact details at the top of this privacy notice.
 

Our lawful bases for the collection and use of your data

Our lawful bases for collecting or using personal information to provide services and goods, including delivery and third-party referrals are:

  • Consent - we have permission from you after we gave you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.

Our lawful bases for collecting or using personal information to receive donations or funding and organise fundraising activities are:

  • Consent - we have permission from you after we gave you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.

Our lawful bases for collecting or using personal information for service updates or marketing purposes are:

  • Consent—We have your permission after we have given you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.
     

Where we get personal information from

  • Directly from you
     

How long we keep information

We do not keep your information for longer than necessary. We keep financial information for up to seven years due to legal and contractual requirements, and we delete all other personal information from our customer relationship management system if we have had no contact with you for three years.
 

How to complain

If you have any concerns about our use of your personal data, you can contact us using the contact details at the top of this privacy notice.

If you remain unhappy with how we’ve used your data after raising a complaint with us, you can also complain to the ICO.

The ICO’s address:           

Information Commissioner’s Office
Wycliffe House
Water Lane
Wilmslow
Cheshire
SK9 5AF

Helpline number: 0303 123 1113

Website: https://www.ico.org.uk/make-a-complaint
 

Last updated

28 August 2024

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DISCLAIMER: Please note that the leadership of this patient organisation and website administrators are not medically trained and do not claim to be.

 

Through our work, we promote and share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

The Psoriatic Disease UK Logo which consists of one vivid purple and one orange abstract people embracing in an infinity loop

Psoriatic Disease UK (also known as PSOR) is a registered charity in England and Wales - Charity No: 1209730

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Registered Office:

1 Miller Close, Hethersett. Norwich, NR9 3GD

© 2024 Psoriatic Disease UK

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