Psoriatic Disease UK
Privacy Notice
This privacy notice tells you what to expect us to do with your personal information.
Contact Details
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Email: info@psor.org
What Information We Collect, Use, and Why
1. To provide services and goods, including delivery and third-party referrals:
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Names and contact details
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Gender and pronoun preferences
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Addresses and date of birth
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Health information (including medical conditions and medical history)
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Payment details (including card or bank information for transfers and direct debits)
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Website user information (including user journeys and cookie tracking)
2. To receive donations or funding and organise fundraising activities:
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Names and contact details
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Addresses
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Payment or banking details
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Donation history
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Tax payer information (for Gift Aid purposes)
3. For service updates or marketing purposes:
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Names and contact details
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Addresses
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Marketing preferences
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Website and app user journey information
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Health information
4. To recruit, manage, and support our volunteers and trustees:
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Names and contact details
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Addresses
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Emergency contact/next of kin details
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Application details, CVs, and reference checks
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Bank details (for the reimbursement of out-of-pocket expenses)
Our Lawful Bases for Processing Data
Under UK data protection law, we must have a “lawful basis” for collecting and using your personal information.
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Services, Fundraising, and Marketing: Our lawful basis for these activities is Consent — we have permission from you after we gave you all the relevant information. You have the right to withdraw your consent at any time.
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Volunteer Management: Our lawful basis for collecting and using volunteer data is Legitimate Interests (it is necessary for the effective day-to-day administration of our volunteer team and to safeguard our organisation) and Legal Obligation (to comply with UK financial laws regarding the retention of expense records).
Where We Get Personal Information From
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Directly from you.
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From third parties (such as referees provided by volunteers during recruitment).
How Long We Keep Information
We do not keep your information for longer than necessary.
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We keep financial information (including donor records and volunteer expense claims) for up to seven years due to legal and contractual requirements.
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We delete all other personal information from our customer relationship management system if we have had no contact with you for three years.
Lawful Bases and Data Protection Rights
Which lawful basis we rely on may affect your data protection rights, which are, in brief, set out below:
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Your right of access: You have the right to ask us for copies of your personal information.
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Your right to rectification: You have the right to ask us to correct or delete personal information you think is inaccurate or incomplete.
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Your right to erasure: You have the right to ask us to delete your personal information.
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Your right to restriction of processing: You have the right to ask us to limit how we can use your personal information.
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Your right to object to processing: You have the right to object to the processing of your personal data.
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Your right to data portability: You have the right to ask that we transfer the personal information you gave us to another organisation, or to you.
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Your right to withdraw consent: When we use consent as our lawful basis, you have the right to withdraw your consent at any time.
If you make a request, we must respond to you without undue delay and in any event within one month. To make a data protection rights request, please contact us using the contact details at the top of this privacy notice.
How to Complain
If you have any concerns about our use of your personal data, you can contact us using the contact details at the top of this privacy notice. If you remain unhappy with how we’ve used your data after raising a complaint with us, you can also complain to the ICO.
The ICO’s address:
Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF
Helpline number: 0303 123 1113
Website: https://www.ico.org.uk/make-a-complaint
Last Updated: May 2026