Our young patient organisation has received much attention in the first few weeks, meaning we have to run before funding is in place. In this chicken-and-egg situation, where tens of people wish to volunteer for our cause, we need certain documents and frameworks to help those living with psoriatic disease today.
This is a call for help to any of our supporters and network with legal expertise who may want to help us fulfil a real human need and build a legacy of patient advocacy and peer support for those impacted by psoriasis and psoriatic arthritis.
If you can help us with disclaimers, volunteer consent, non-profit policies, or identify legal areas we need to address as a new charity, please get in touch and help improve patient outcomes.
On behalf of the psoriasis and psoriatic disease community,
- The Psoriatic Disease UK Board of Trustees 🧡💜
Comments