Have Your Say: Mapping NHS Care Pathways for Psoriatic Disease
- Psoriatic Disease UK
- May 9
- 2 min read
Every day at Psoriatic Disease UK, we hear from people across the country who are struggling to access the specialist care they need. We know that waiting lists for NHS Dermatology and Rheumatology departments are under immense pressure, and we understand the daily frustration, pain, and uncertainty this causes for our community.
However, to force policymakers, healthcare leaders, and the NHS to take meaningful action, anecdotal stories are simply not enough. We need hard, undeniable evidence.
Today, we are officially launching our national evidence-gathering survey to uncover the true picture of NHS waiting times across England and Wales. We need your help to map the reality of these delays and their hidden toll on employment, mental health, and daily living.
Why We Are Doing This
Our goal is to advocate for better resource allocation and improved patient pathways. When we take our campaign to Parliament and NHS decision-makers, we need to be armed with up-to-date, comprehensive data that proves exactly where the system is failing and where support is most urgently required.
By completing this survey, you are directly shaping the future of our advocacy work. Your feedback will help us highlight the human cost of delayed care and ensure that the voices of people living with psoriatic disease cannot be ignored.
Who Should Complete the Survey?
We are asking anyone living with psoriatic disease in England and Wales to take part.
We need to hear from you if you are:
Waiting for your very first specialist appointment.
Overdue for a routine follow-up or a change in treatment.
On a Patient Initiated Follow-Up (PIFU) pathway, whether you are currently stable or struggling to secure a requested appointment.
Currently receiving timely, routine care (this helps us map where the system is working well).
Quick, Secure, and 100% Anonymous
We know your time is valuable and your medical data is highly sensitive. We have designed this study with strict privacy safeguards in place:
It takes just 3 to 5 minutes: The survey consists entirely of simple multiple-choice questions.
It is completely untraceable: We do not collect names, email addresses, or IP addresses. Your answers cannot be linked back to you, ensuring you can share your honest experiences with complete peace of mind.
How You Can Help
1. Take the Survey
Please click the link below to share your current situation. (Note: To protect your privacy, please do not share specific medical details or hospital names on our social media pages—keep your answers securely within the survey link).
2. Share the Study
The more data we gather, the stronger our collective voice becomes. Once you have completed the survey, please share the link with any local support groups, friends, or family members living with psoriatic disease in England or Wales. If you are a healthcare professional, we encourage you to share this initiative with your patients and colleagues.
Together, we can build the evidence base needed to demand a fairer, faster, and more effective healthcare system for everyone living with psoriatic disease. Thank you for your continued support.
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