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Psoriatic Disease UK: A Commitment to Transparency and Community

Updated: Jun 15

At Psoriatic Disease UK, transparency, trust, and community are at the heart of everything we do. As a patient-led, person-centred charity, we are driven by a singular mission: to support everyone impacted by psoriasis, psoriatic arthritis, and associated comorbidities. Today, we are thrilled to share an important milestone in our journey—we are officially registered with the Fundraising Regulator.


What Does This Mean for Our Community?


The Fundraising Regulator is the independent body that sets and maintains the standards for charitable fundraising in the UK. By registering with them, we are making a firm, public pledge to adhere to the stringent Code of Fundraising Practice.


For you—our supporters and generous donors—this registration is a guarantee that our fundraising is always:


  • Legal, open, and honest: We are completely transparent about how your donations are used.

  • Respectful: We will always respect your privacy and boundaries, and we will never put undue pressure on anyone to donate.

  • Accountable: If you ever have questions or concerns about our fundraising, we have clear, regulated processes in place to listen and respond.


Fundraisers at Run Norwich 10k
Fundraisers at Run Norwich 10k

Why Your Trust Matters


We know that every single pound donated to Psoriatic Disease UK is hard-earned. Because we prioritise the immediate needs and pain points of our community today, we rely on your generosity to keep our vital services running. Your donations fund our peer support networks, the development of our new Information Hub, and our tireless advocacy work—such as fighting for better NHS care pathways for psoriatic disease.


We do not believe in reinventing the wheel, but we absolutely believe that people living with psoriatic disease deserve better. Registering with the Fundraising Regulator is just one more way we are working to ensure that our foundation is strong, ethical, and entirely focused on you.


The Importance of Community Support


Community support plays a vital role in our mission. We recognise that living with psoriatic disease can be isolating. Many individuals face challenges that extend beyond physical symptoms. The mental health impact is significant, and it can affect daily life. That’s why we focus on creating a supportive environment where everyone feels heard and valued.


Our community initiatives are designed to foster connections. We encourage individuals to share their experiences and support one another. This sense of belonging can make a world of difference. It can alleviate feelings of loneliness and provide a platform for sharing coping strategies.


Our Commitment to Advocacy


Advocacy is at the core of what we do. We amplify voices and work creatively and boldly to drive change. We understand that systemic issues can hinder access to care and support. That’s why we are committed to advocating for better policies and practices that benefit those living with psoriatic disease.


Through our advocacy efforts, we aim to influence decision-makers and raise awareness about the challenges faced by our community. We believe that everyone deserves access to quality care and support. Our work is focused on making this a reality.


How You Can Get Involved


Your involvement is crucial to our mission. There are many ways to support our work and make a difference in the lives of those affected by psoriatic disease. Whether you choose to volunteer, fundraise, or donate, every action counts.


We invite you to explore our Get Involved page to learn more about the various opportunities available. Your support can help us continue our vital work and expand our reach within the community.


A Heartfelt Thank You


We want to say a massive thank you to everyone who has supported us, fundraised for us, or donated. We could not do this without you. Your trust and generosity empower us to continue our mission and improve the lives of those affected by psoriatic disease.


You can view our official listing on the Fundraising Regulator directory here: Psoriatic Disease UK Directory Listing.


To learn more about how you can get involved or support our work, please visit our Donation page. Together, we can make a meaningful impact and foster a strong community for everyone affected by psoriatic disease.

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DISCLAIMER: Please note that the leadership of this patient organisation and website administrators are not medically trained and do not claim to be.

 

Through our work, we promote and share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

The Psoriatic Disease UK Logo which consists of one vivid purple and one orange abstract people embracing in an infinity loop

Psoriatic Disease UK (also known as PSOR) is a registered charity in England and Wales - Charity No: 1209730

Registered Office:

1 Miller Close, Hethersett. Norwich, NR9 3GD

© 2026 Psoriatic Disease UK

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